A quick update...the nurse phoned with Kayleigh's counts Wednesday afternoon. Unfortunately, all counts dropped. Her white blood count went from 1.1 to 0.5 (low), hemoglobin from 10.8 to 10.4 (okay range thanks to red blood transfusion last Friday), platelets from 51,000 to 43,000 (down from 121,000 last week and low, under 20,000 is transfusion time), and ANC/immune level from 260 to 170 (too low to be outside of the bubble). The nurse told Jason to expect fevers to come on in the next couple of days. Kayleigh has had quite a cough for the past two days and today has had a fever just over 100 since she woke up at 6:30 this morning. If it reaches 101, she will be sent to the ER and be hooked up to iv antibiotics for three days. Since her ANC is below 500, she'll probably be admitted into the HemOnc unit for the duration. Once she gets over this hurdle, hopefully phase 5 will be smooth sailing for her. I'm hanging onto Dr. D's words last week, "...in a couple of months, she'll be like a normal kid." Normalcy, I long for normalcy, whatever that may be, for her and our family.
Kayleigh remains strong and brave! We're so proud of her, her strength and courage, and her recent efforts to educate her peers and teachers about all she's going through. She's an honored hero for the Leukemia & Lymphoma Society's Pennies for Patients campaign. Her smiling face is on posters in schools all over the area. She's video messaged a few different schools asking for their help in making the difference in the lives of kids like her. She's absolutely amazing! She steals our hearts more and more each day!
No comments:
Post a Comment